Demo of CuresDev Patient ID (PALIND) technology to link rare disease datasets
Link a patient registry and clinical trials dataset with a shared patient identifier
I am excited to showcase the use of CuresDev technology to link rare disease datasets. Our open source tokenization technology enables CursDev to uniquely identify patients across datasets without the actual exchange of patient identifying information. In the demo below, we showcase how a registry dataset and a clinical trials dataset can be linked using a CuresDev Patient ID.
Shared Patient ID to link a Patient Registry & Clinical Trials Data
The demo video below showcases how the CuresDev technology can be used to link patient registry and clinical trials datasets using the shared CuresDev Patient ID. At a high-level:
The Patient Registry data owner converts patient information into tokens, uploads the tokens to CuresDev to generate IDs for each patient, and stores the IDs in their database
Similarly, the Clinical Trials data owner uses CuresDev software to convert patient information into tokens, generate Patient IDs by sending the tokens to CuresDev and stores the IDs in their database
The presence and storage of the IDs is more than sufficient to ensure the datasets can be combined in the future.
When it comes time to combine the datasets, CuresDev software can be used to generate a crosswalk between IDs representing the same person from both the datasets in order to create a longitudinal view of patient data
Our technology provide strong privacy guarantees, protects against accidental re-identification, tolerates missing data, and works globally. This is where we are quite different from NIH GUIDs or similar solutions.