Roadmap to CuresDev 1.0
Here is our plan for the next 4 - 6 months: Focus on large-scale adoption + Raise funds thru Grants
There are few key defining moments in a company’s evolution. About two months ago, CuresDev went through one such moment - the company nearly came to a halt. We had made great progress towards in building the core tokenization algorithm, creating a demo application, and getting positive feedback from early customers. But we didn’t have any path to making money. Here is why:
The organization buying the product does not get to reap the benefits!
Patient Organizations buy and use the PALIND product as a “best practice” to make their data linkable to other datasets in the future. They don’t derive any monetary or societal benefit for several years until a biotech company links and uses their dataset for commercial purposes. Why would an organization pay for a product that doesn’t immediately benefit them?
After three months of exploration, we have a good news and bad news. Bad news is that we still don’t have a clear business model. Good news is that there is a dire need for the PALIND product in the rare disease ecosystem. Almost every organization investing in patient data collection want this product to ensure their data are linkable in the future.
We have decided to go all-in and build this product using non-diluted grant funding. This will allow us to focus on driving large-scale adoption and demonstrate the benefits of the product. It will also give us bragging rights, exposure and, more importantly, the time to find a sustainable business model in the future.
Roadmap to CuresDev 1.0
We will be focused on two overarching themes:
Theme 1: Large-scale adoption of the PALIND Product
The focus here will be to identify the set of initiatives that will get 10 - 20% of research studies collecting rare disease patient data to use the PALIND Product. We will be doing the following:
Build a WebApp to manually generate PALINDs as a means of lowering barrier to entry
Create a public Marketplace listing the studies / datasets using PALIND to generate organic visibility and adoption
Draft an Open Standard defining the specifications of the PALIND technology and create a “working group” to advance the standard
Validating the tokenization and linkage technology with millions of patients data to get reliable linkage accuracy numbers
Build APIs to integrate with data platforms and automate generation of PALINDs
Dashboard displaying anonymized counts of patients with a genetic diseases derived from the PALINDs
Add more governance-focused features such as IDs for BioBanks, Patient-managed IDs, Data Governance dashboard for IRBs, among others.
Theme 2: Identify additional Grant funding
We will be pursuing grants to build additional functionality described above, building open source communities, bridging with other GUID systems, developing advanced AI models, and more generally supporting the general and administrative expenses of the company. This will allow us to sustain our growth and product development while we figure out the business model.